You think you know where you’re going, but suddenly, life has other plans. The Naughty Gene is a multi-platform narrative exploring the hidden stories around an incurable and fatal brain disease, affecting children and young adults. The project is inspired by the real life stories of the families, teachers and nurses who care for the children and the scientists who are searching for a cure.

The Naughty Gene is experienced as an interactive installation in which participants face the difficult decisions of the scientists and the parents. At the end of the live installation, participants receive a printout with the choices they made and the story that ensued.

The aim is that participants leave the experience with a better understanding of the interconnected stories of patients, carers and scientists battling an incurable disease.

The Naughty Gene was created by Théo Le De Fuentes, Peter Lang, Steven Melendez, Erinma Ochu, Yewande Pearse, Philippe Rivière and Caroline Ward. The project was developed at the Tribeca Hacks Story Matter Hackathon.

Special thanks to Adria Le Boeuf, Amelie Leenhardt and Opeyemi Olukemi.